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Up date
Hi All - Doctor called today with change of plans - Holding off on the 4 to 6 wks of chemo - instead pushing ahead to find a donor then the normal amount of chemo and the transplant. Doctor feels that the fibrosis is making the biopsy difficult to read and doesnt believe the blasts are as high as they show. (?) I reallydont understand that part - but - I am for going ahead and finding a donor - I was wondering how that was going to work out - Question - any ideas or comments on how long it has been taking to find a donor thru the registries? Doctor said it can take two months or more. Wondering - how long ---- Hope all is holding on and things are doing well :-)
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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