Thread: The Gambler
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Old Tue Sep 10, 2013, 12:45 PM
tytd tytd is offline
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Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
"mild MDS"

Hello Rich,
Just from looking at the numbers you have listed, it doesn't appear that your kidney function is bad enough to cause the anemia and Procrit usually helps the anemia in chronic kidney disease. Also the Vidaza doesn't appear to be improving your anemia. You did not list your B12, folate, erythropoietin, ferritin levels or bone marrow biopsy report. Do you know those results? If your erythropoietin level was greater than 500 you would likely not respond to Procrit.
Often one pathologist can read dysplasia on a bone marrow biopsy and another one may read it differently which may be why you got different diagnoses. I'm assuming that your bone marrow tests did not show any increased blasts or chromosomal abnormalities, is that correct?? If you have not already done so, I might consider seeing an MDS specialist, like someone at the Moffitt Cancer Center in Tampa, Fl if you live in Florida (or maybe just ask them to review your bone marrow slides). If you have a smoldering form of MDS which is in the low risk category than you might do well to just "watch and wait" with no treatment, especially since your hemoglobin does not now appear to be in the transfusion range anyway. Are you on any medications that might contribute to the anemia? Good luck tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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