Thread: The Gambler
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  #9  
Old Sun Sep 15, 2013, 02:19 PM
HughHC HughHC is offline
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Join Date: Sep 2011
Location: Lewes, De, USA
Posts: 18
Rich D

Rich

My numbers are somewhat similar to yours although some are better and some worse. Apparently my cytopenias have been below normal for approximately 12 years from the records that I have collected. I finally prevailed upon my hemo to further delve into this and let's find out what the real scoop was. I was set up for the BMB at Johns Hopkins and was told that I have MDS. This was 4 0r 5 five years ago. I did see a Dr. Steve Gore who delivered the news.

They do monitor my counts regularly. I go to JH once a year and also do the CBC once a year locally.

I have been told by the MD at JH that I definitely do not need to take on any chemo at this point.

I am in the process of moving to FL (Venice)ASAP when our house here in DE sells. I intend to connect with Moffitt in Tampa and hope to see DR. List. Since you seem to live in Brooksville this seems to be a good option for you. Moffitt, I have been told by the people at JH has a very good MDS program and Dr. List has headed it up.

It could be the place for you.

Best of luck
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