Dear Billy and Tina and Pasta -
Hi - Billy and Tina - I said it before and I will say it again - you both are such an inspiration to all of us. This is a very hard disease and you hit it on the head - two people with same disease - totally different responses.
Pasta - I too have felt the same way in the past few months. I have developed the most unbareble pain in my stomach and cant figure what it is. My bones throb that I just cant take it - but I am holding on for my donor - I just feel things will be different -
Hang in there - and Billy what a wonderful thing you have done with the car. I am sure she is very happy she is getting to ride it.
Love to you all. susan
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MDS RAEB 2 w/excess blasts - 3+ Fibrosis - previous treatments ATG, Vidaza, Dacogen and Rituxan. Waiting to find my match - Susan
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