Well I've been randomized as a control in the hospitals study, so I guess the study isn't double blind like I thought, I will still have a T-cell depleted SCT/BMT, but no Mucositis drug, nor a hormone reducer...
It's fine by me, as I will still get extra attention / documentation as a control for the study. Unfortunately (for the study) I will skew the results with my record setting recovery!
(or so I hope...)
Scheduled for battery of tests on October 7th... My brother was cleared as the donor, although he was carrying Pneumonia, so they put him on 5 day course of antibiotics...
All the best to everyone here...
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10
; 5.5% blasts down to 3%, now 1% (post BMT)