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Old Fri Sep 27, 2013, 10:50 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Quote:
Originally Posted by DebS View Post
My problem has been keeping him out of the bags that I have "hidden" these in! He is so nosy

Deb
Deb I literally LOLed! I'm having the same trouble! What have you been packing?
I bought two plastic storage bins and packed them tightly. Tetris jenga, puzzles, 3 duck dynasty books (they look really good faith based and inspirational) battle ship, camo blankets and clothes etc... Advise from people here like plastic utensils, hard candy (for bad taste infusion moments) extra soft charmin, and my husband requested a razor scooter, 2 ft of chain, and clips (so as he says, he can scoot down the hallway and connect his IV pole to the scooter lol)
But I don't want him in those bins till we get there so if he's feeling bad or bored I can see if something in it will cheer him up. Also someone suggested Netflix and I'm happy they did! Can't believe how much is available there
I'll be thinking of y'all please message me if u need anything or want to vent.
Keep us updated! I'll do the same
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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