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Thanks Birgitta. Unfortunately not all public hospitals here thought it was serious, but I found a lovely private hospital and private haemotologist after two weeks of misdiagnose and running around. I am now well on the way to recovery, my leg swelling in the calf has reduced to almost normal (the thigh still has a bit to go), and my coughing has reduced considerably. I haven't done much yet to test my breathlessness yet as I have only just got out. But in three days I am feeling terrific!
My main concern with the level drop was for work, as they need to keep finding a replacement which is not easy in my job. I was just wondering if this was the start of the end of watch and wait status. I am aware that I can manage on the levels I have, it was more the sudden drop and if it would plateau or keep going.
Honey
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Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
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