Thread: I'm Back!
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Old Sat Oct 26, 2013, 11:34 AM
sbk007 sbk007 is offline
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Join Date: Apr 2013
Location: NY
Posts: 322
Quote:
Originally Posted by Jill2008 View Post
Steve, I had started out at 7 days too, but it was too much for me, especially every 4 weeks. I had just relapsed following a transplant and was still very weak plus I am 5'9'' and only weigh 125 lbs. Yes, everyone is different! It wasn't until cycle 12 that I no longer needed transfusions. The 5 day schedule every 6 weeks seems to be working fine for me. I should check into taking the oral Zofran before I go in though. I have some at home and am so surprised no one has even suggested it. It would sure free up some of my time and also for the nurses at out-patient chemo. Thanks!
I hope your new schedule works well for you. Stay in touch and let me know how you're doing.
JILL
Jill, My hematologist did not know that there is generic Zofran and he knew I had a bad prescription benefit and so he ordered Zofran by IV. The brand name Zofran is 16-18 bucks a pill, but even at that price its worth it because you take the pill and it works just as well as the IV. I found that Zofran is popular for morning sickness and a lot of people get the generics its called ondansetron. I hate to say it but the hospital can bill for the infusion time and the drug but I know a lot of people take it IV before treatment. Hence, no conspiracy theories from me.
So when I told my heme that they were 25.00 for 60 pills he thanked me for the info and said to take the pill. Then I said if you prefer the IV ill do it, he said no no no, same stuff and no infusion. Off topic there's some promising studies with Zolinza & cytarabine for patients that stop responding to Vidaza.

http://www.mdsbeacon.com/news/2013/1...a-failure-mds/
Take care, Steve
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