|
Vidaza, no fun
Hello Sidhartha,
I took Vidaza last year for few cycles in the attempt to treat my MDS. At first I got them as injections but due to severe skin reactions it had to be changed to IV form. The side effects always came few days later and were no fun to deal with. I still have markings on my stomach where the injection site was. My blood counts also always crashed after treatment, that then resulted to blood transfusions, usually 1-2 units.
I was risk-2 and had to get a bone marrow transplant before it turned into full blown leukemia. Since the BMT in Dec2012 I have had to get more blood throughout the year as I recovered, and now I am struggling with super high ferritin levels because of the frequent transfusions. But I am MDS free!
All the best to your dad. Stay strong, there is hope.
Tii - 37 yrs old, MDS survivor (11mo old)
|