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I echo Whizbang's comment about weighing the options of transplant. You really do need to be committed to it and have all of the backup support he mentioned.
My husband was on Vidaza and had good results for awhile. It bought us some time to travel and enjoy family and friends. Then things went downhill fast. His hemoglobin was dropping and dropping. After the BMB in August, we were pretty much not given a Door #2. Transplant was the ONLY option.
He is at Day +74 and doing well. Not great, but all things considered, he is doing very well. We are so grateful that we proceeded with the transplant.
He received his MDS diagnosis exactly one year ago today. So from Jan.-July he did well with the Vidaza. Then in August the decision to go to transplant was made. He went into the hospital the end of Sept. and had the transplant in Oct.
That should give you an idea of a timeline. But everyone is different. When we first heard the news and he was going through the treatments, OUR timeline was maybe next March. It did not turn out that way.
My advice would be to do your research, find a donor, talk to as many doctors as you can. Even with starting the Vidaza treatment, we were looking to his siblings for a donor. How blessed we are that his brother was a perfect match!
These forums are the BEST place to get support. The people here know what you are going through. The early days of diagnosis are definitely the most frustrating and confusing. People here can help you.
Good luck to you and God bless!!
Deb
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