THis is a very personal decision that after much research and discussion with your healthcare team you approach carefully. Before a decision is made all the ODDS are presented. Sometimes the "watch and wait" is not such a bad idea with conservative therapy.
My husband did watch and wait for 4 years and then his counts dropped and he was transfusion dependent. Only then did he start Vidaza and had a great response...18 months!
Then looked at other options.....transplant was the last option available.
If we had any regrets it was that during our Vidaza phase we didn't start transplant evaluation and workup. From the time the Vidaza failed to transplant was 11 months and that was with two 10/10 sibling matches.Yes, our decisions caused some delays. Rick decided he wanted one more summer with the grandkids, wanted will and finical matters in order and then there are always hiccups. If we had started the process earlier and had it in our back pocket Rick would not have been so debilitated going into the process.
All this to say it is never to early to start the process.
Timing is everything and finding the right timing for you will be between you, your family and your medical team. Find the right match.
Rick has celebrated 2 years of life since transplant. It takes nearly a year or more to get back to baseline. Plan accordingly.
Hope this helps.
