Hi jayc,
It is true as Mseth's mothers's doctor says that MDS patients can live many years with iron overload. Patients with Thalassemia since childhood who receive many txs develope complications for example damage of the heart. Most studies of iron overload have been done in this patient group.
MDS patients manage much better and I have read studies from world famous clinics where they have patients with ferritin values higher than 15000.
MRI of my own heart some years ago didn't show a trace of iron.
Here is a study that shows that myocardial iron overload (iron overload in the heart muscles) is not frequent in MDS patients and it is not correlated with liver iron concentration and serum ferritin levels.
https://ash.confex.com/ash/2013/webp...aper59448.html
Remember that we manage well with one third of the liver.
Kind regards
Birgitta-A