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Vickinish ... Your reply is interesting.
I've had three opinions on my labs and BMB report. All point to a BMT if I want to live. Whether that's this year or in five years, it's imminent. From what they say and what I've read, at some point drugs stop working.
So, the question that is unfolding is when?? While I'm healthy or when I get weaker.
My WBC count keeps increasing each month and is now at 34. Hemoglobin and platelets keep decreasing.
When I start the Dacogen we will see how effective it is. I'll be starting that within the next month and they have taken blood to analyze and look for a match.
I am in the deep learning and exploring phase of this. I'm happy to share anything...
JOHN
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John, 68, Portland, Or. Dx with CMML on 12/1/2013, 3 days before admission for SCT, blasts went to 23%, AML. Did 7+3 chemo regimen. The chemo worked and blasts are 1% and did BMT on 1/1/15.- 12/2/15, ongoing GVHD in eyes. Lung fungus and Bronchiolitis Obliterans (BO).
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