CMML really varies from person to persosn
Hi John. I was diagnosed with CMML in 2006, low platelet count prompted the BMB. Watch and wait for about three years resulted in my platelets climbing, white and red cells stable. When the platelets reached 900,000 I had another BMB (now they sort of waffled on the diagnosis but still think it is CMML) and I started the hydroxyurea. That knocked the platelets down quickly and did not affect the other cells much at all. Now on a very low dose and my labs are all stable.
I have no symptoms and, after the initial thought that my days were numbered, I feel fairly secure. But I do fear the transformation to AML that might occur. No siblings, age 68, I feel a stem cell transplant is not a good option. But it might be the only option should it come to that.
Let us know how you are doing, perhaps start a new thread. I will think good thoughts for you.
|