While I received my transplant I was part of at least 5 different studies, one took away the anti-mucositis drug I should have gotten (I was the in the control)... I got mucositis pretty bad, but in the end it was well worth it if my contribution helped...
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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