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Michele,
I had my 1st BMB on 6/14/2013 - 5.5% blasts
2nd 5 weeks later and they showed - 3% blasts (before Dacogen)
3rd 10/7/2014 they showed 4% blasts after two rounds of Dacogen...
I insisted on the 2nd one before I started Dacogen (was unsure I wanted to do the chemo), but ultimately I am glad I still went through with the pre-transplant chemo, it was clearly the right choice...
What Dacogen did was put me into symptomatic remission with most of my counts going into the 'high range' of normal, and actually made me feel 'normal'...
This was great, as I went into my transplant strong, and counts high, which I believe has helped with my transplant recovery... I'm at D+96, since my transplant...
Only the Best!
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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