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Old Sun Mar 23, 2014, 11:18 PM
KMac KMac is offline
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Join Date: Oct 2012
Location: Golden, Colorado
Posts: 103
Ray,

Like Dan, I too am a patient at CBCI/PSL. And like Dan, I think the world of them.

Very glad to hear you will be seeing Dr. Nash. He is my doctor as well. I've never met a doctor I am more fond of. He lives and breathes hematology.

And as Dan says, many of the doctors at CBCI have worked extensively at Fred Hutchinson in Seattle, including Dr. Nash.

My gut feeling is, we can stay home here in Colorado, and receive as fine and comprehensive care at CBCI as we would receive anywhere.

As Dan says, there may be clinical trials at CBCI you would be eligible for. And on the chance there was a trial for which you need to go elsewhere, I'm confident they'd do what they can to help you get there.

I am sorry to hear of your experience at CU Denver, it is a rotten thing to come away from a medical institution with the impression they do not wish to treat you. From my limited but not completely uninformed understanding, I have reason to believe CBCI/PSL is a far superior location for treating blood disorders. For one thing, while I do not have the statistics handy, I believe the latest 1-year post BMT survival statistics were significantly higher at CBCI/PSL than they were at CU Denver. Also, I've met another 73 year old man with MDS who was doing well after transplant at CBCI/PSL. So I do not think your age would stop them from considering a transplant for you. Further, CBCI/PSL has over a half dozen hematologists on their transplant team, whereas if I'm not mistaken CU Denver only has a couple.

I wish you the best in your fight against MDS.
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.

Last edited by KMac : Sun Mar 23, 2014 at 11:32 PM.
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