Thread: My Wife's Sudden Medical Issues
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Old Mon Mar 24, 2014, 08:51 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
There will be a AAMDS conference in Detroit in July.

http://www.aamds.org/support-and-community/conferences

Today, you can call Leigh Clark at the number at the bottom of the page. She is the patient educator. She will calm you down and give you the proper information you need.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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