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It seems your first biopsy only raised the possibility of MDS and the second was still not clearly indicating that diagnosis.
In my own experience I had chronic idiopathic (unknown cause) neutropenia ranging from mild to severe for 6 years before being diagnosed with MDS. Perhaps MDS will rear its ugly head eventually but in the mean time hopefully you will be able to live a normal life by just being careful to treat wounds/insect bites, sore throats, etc promptly.
All the best as you seek answers to your questions. There are many very knowledgeable people on this forum who may be able to help.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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