Shazza,
You may want to take a look at this paper - http://bloodjournal.hematologylibrar...4/979.full.pdf, particularly the last paragraph.
I am not competent enough to suggest whether you have MDS or not; it can be something else. Seeking a second medical opinion might be a good idea.
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Father, 83, dx MDS RCUD (RBC) monosomy 7+del7q+del20q Feb 2014, transitioned to RCMD (RBC+platelet) Apr 2014, started Decitabine on 21-Apr-2014 at 2/3rd the recommended dosage on Regimen 2 with no response, terminally ill and transitioned to hospice care on 30-Apr-2014, passed away on 18-May-2014.
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