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I don't know where you live but can you check into non-family match possibilities? Keep posting and at some point someone will say something that will really help. Your questions help the rest of us. My husband isn't eligible for a transplant so we do transfusions and Exjade. We keep reading up on new treatments and all. Best we can do. But he's doing fairly well. I hope you get some good help too.
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Caregiver for husband
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