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MDS RAEBII new to the forum
I'm new to the forum but I have been following it for the past year. I have a million questions but don't know where to start. There is not much good news on this disease. I am considered clinically stable because nothing has change for the better or the worse since my diagnosis. At the moment WBC <1; HgB never gets much above 8. Transfusions every 2-3 weeks. Neut rarely upbove .4 and platelets between 7-30. Mostly stays in the teens. I never feel good, I hate my loving family has to see me go through this, but I do have faith in God to see me through this, and I tell myself each day "at least it's me and not my child/grandchild or husband" I have a strong family support system and a ton of friends. I'm just scared. I don't know how to play this game. Thanks for letting me vent. Maybe I can think of a question next time! You all seem to be so knowledgable! Oh yeah......I have a wonderful team of supportive Drs here at home and I see Dr Rizerrie at Duke University in NC.
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DX jan 2013 RAEBII blast 15%. All 3 cell lines affected and critically low. Dacogen and revlimid no luck. Cytarabine and idamycine 2rounds. Remission achieved but lasted less than 3weeks. Blast back to 15%. Vidaza started Oct 2013. 6 rounds so far. No change in blood counts all still low. 59 yo.
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