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Yep, you're on the cancer registry. I never thought of MDS as cancer until my blasts started increasing...that's when I accepted that it was indeed a cancer. I only found out I was on the cancer registry when I was given a copy of my bone marrow biopsy results from Sullivan and Nicolaides. Right there on the bottom in black and white it said that they had submitted my details to the cancer registry as per legislation. Who knew there was a law making them divulge that information to the government? Nothing is private any more. I'm a bit reluctant to agree to my medical information being embedded in a chip in my Medicare Card too. Seems a bit Big Brotherish to me.
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