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Old Wed May 7, 2014, 07:34 PM
MaryS MaryS is offline
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Join Date: Nov 2013
Location: Herndon VA my father in New Orleans,La
Posts: 24
Weary feeling

Thanks Baile, my dad tolerates the chemo well too and probably feels better when he is on it . Probably because of the Prednisone. I do realize that his blood counts are low, and that is why he feels out of sorts. When his RBC's went from 2.45 to 3.45 I could tell he felt better. My dad wakes up and looks normal , but as the day goes on it changes. I just want a day for him where he doesn't feel unstable, weary. He is battling Lymphoma as well, so maybe it's add to the feeling.
I am so happy to hear that you feel well. I am always happy when I hear success stories. It gives me hope. At this point all I want for my dad is quality of life. I hope decitabine can do that for him.
Thanks for sharing Baile.
__________________
Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
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