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How will he be receiving the Vidaza? I get it with subQ shots in my stomach. There is very little pain if any. If he is getting seven days of Vidaza it is somewhat important to plan the shot locations. I would get three on one side and four on the other. The shots are much faster than IV. There will be a 1" x 2" red area that feels like a sunburn. The shots are not felt during the day and never caused discomfort for sleeping. But again, everyone reacts differently. It is the Zofran that causes some discomfort and constipation. Be very careful about that and get good advice from the doctor ... it is important.
The Vidaza has me feeling absolutely normal. It is never too early to start thinking about the pros and cons of getting a stem cell transplant. The Vidaza has unpredictable lengths of time when it is effective and can drop off quite rapidly. My counts started improving after the second cycle.
I don't think my experience in Vietnam had any influence on my MDS, but that is a complete guess. There is absolutely no way to prove it one way or another. I haven't found anyone else in my unit that has MDS.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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