[writer]

Thanks for your input. My last iron profile indicated I'd need to start the chelation with my next transfusion (which I swear isn't soon I'm just going to SCREAM!) I feel like a goldfish lying on the floor gasping for breath sometimes.

As to Chriley's comment - I feel it will most likely cure the tinnitis. In December I had 3 units transfused. My tinnitis subsided to almost nothing afterward. Then as my HGB began to drop again it came back to the same extent it has always been. My MCV was almost in the normal range on my CBC - of course my RDW was through the roof!

I'm at Mayo Clinic but I'm quickly losing faith.

My MDS was diagnosed from a bone marrow done in December - is a very unusual form in that only my RBC's are impacted. My platelets, Lymphs, and Neutrophils (Segs) are all normal and I have a wonderful immunity.

I just feel frustrated when I get to this point in thing where I need blood but my HGB is only 0.1 grams below my established transfusion level.