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I just wanted to pop in to send you my best wishes. Just because your daughters counts are bottoming out doesn't mean anything bad is happening. This is common with Vidaza. Re doing the BMB is a good idea...it'll give them a direction to head in. Some people have dreadful counts with Vidaza for up to 9-10 months before it starts working properly.
My haem wouldn't give GCSF with MDS either...it's an individual haem opinion. As for the pain...I didn't get any so I don't know where that would be coming from except (in your daughters case) her gall bladder or something that needs investigation. Have they scanned her spleen to see if it's enlarged? Is it possible to ask the doctor for some routine pain relief to be ordered that will prevent the pain from starting rather than trying to relieve it once it's already there? Something compatible with her other medications and medical conditions? Prevention is always better than cure.
Hope it starts improving soon.
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