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Visited my haematologist yesterday and asked about the large platelets and hypogranular neuts. She said they are quite typical of MDS and not of any particular concern.
Barbara - Interested to hear about your husband's reaction to the iron supplementation. I have been feeling really tired and sleeping terribly (4-5 hours) so about a month ago started on organic iron supplementation (Floradix). Had my 4-weekly CBC yesterday and guess what? My haemoglobin had dropped from 11.5 to 11.3 and there was no difference in my RBC (still 3.3) or haematocrit. So that was a waste of time and money! WCC improved a little this time, though that could be because I've just got over an infected burn on my hand and am battling dermatitis on my neck.
Had my gamma globulin infusion and that always helps me sleep a bit better for a couple of weeks.
Hope you guys are winning with your battles!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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