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Old Thu Jul 17, 2014, 02:32 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
jmajjb - glad you are feeling physically normal most of the time even though your mind is struggling with the idea of MDS.

Sorry I can't remember if you have had a biopsy yet? That should confirm your MDS status (if you have MDS). If you have less than 5% blasts then you can possibly rule out MDS as the cause of your dizzy spells. I had dizziness quite a lot when my blasts were at 10% but not often since my blasts dropped below 5%.

Perhaps the combination of supplements is also contributing. Did you check with your doctor/naturopath whether you should be taking all those things at once?

Re Vi D3, I'm interested in your wondering about whether it could decrease platelets. I've been led to believe on this forum that it increases platelets, but this year I've often been quite inconsistent with taking my Vit D3 and my platelet count has improved!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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