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Cheryl,
My BMB report says: although MDS cannot be excluded it is not favored as diagnosis, please exclude all other possible causes of ring sideroblasts.
The marrow is normcellular, normal genetics, no dysplasia, but has 25% ringed sideroblasts. The first hem. said it was a hereditary sideroblastic anemia. But Mayo hem thinks early MDS. I have no blasts. He wants CBC in 3 months. My last CBC showed Hgb 11.5, HCT 32.5, RBC 2.9, platelets 90,000. WBC has always run normal around 4.2 5o 5.
I did read the pathologist report from Mayo and it said the working diagnosis from BMB is maybe early MDS. But then the Dr. said to me it is MDS. But he said it is mild. So I don't know what it all means. I cried and cried and he said : it is not bad why are you crying? I said because I had read all the statistics, he then said he has many patients that live decades with this and not to worry. But of course I am worried... He doesn't believe in any supplements or vitamins even. So I see a naturopath who has been working with me- that is where all the supplements come from. I did scale back a little but really think there has to be some nutritional component to this so I don't want to cut too many things out.
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