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I really wouldn't be so stressed if I felt normal but with that dizzy feeling I really get scared! I try not to read the statistics anymore but have tried finding people in my situation. Or the people he says live decades with no problems. I can not find these people! Why aren't they posting on any forums or blogs? I just want to find someone to talk to in a similar situation.
My platelets are consistently around 90 to 100,000 since blood testing started in Feb. 2014. He is not concerned as their is no bleeding, bruising or petechia.
I have had 2 really good days without dizziness and have kept MDS out of my mind much better but still wake up and realize that yes I have a serious problem I get depressed.
Yes all 3 Drs. have told me not to worry- I wish I could just believe them!
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