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AAMarge,
I had the harshest conditioning possible (including TBI), due to my high risk MDS and terrible cytogenetics... It was quite impossible for me to revert due to chimerism, yet 8 months after my transplant my MDS transformed to RBC leukemia, still 100% donor...
I'm 23 days out from my (7+3) chemo, waiting for my counts to come back, and moving forward with the same sibling donor also... I agree it's crazy going through a 2nd Transplant (scheduled for 8/31/14), the Brightside being - knowing what to expect... And the fact that we were lucky enough to be able to handle and have a second transplant...
I wish you and your daughter continued success, and a permanent remission...
All the Best, and may God Bless us ALL!!!
David
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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