Quote:
Originally Posted by Laurie S.
He responded so quickly (4 weeks) the first time on cyclo, we're still getting used to this slower response being more of the norm. But I was surprised that his doc is planning to taper completely at some point, I don't know why I assume he'll need ongoing med support, and I'd love to see research data either way... does it exist?
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I doubt it for PRCA. There is hardly anything.
There has been discussion on these boards relating to AA as to whether a taper should be slow or fast after ATG. I don't know if anything was decided, but I would vote for slow.
That is why I go to Dr. M. He has the most patients with PRCA. But I guess your guy has more with PRCA/CLL. Rare diseases are hard to study.