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Old Sat Nov 8, 2014, 11:07 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Jason,

first off, i am very sorry that your father is having to go through all of this. it can be a very difficult ride.

a lot of doctors like to see some gvhd as it frequently demonstrates some graft versus leukemia effect and in some cases helps clean up what was missed during the transplant conditioning process. unfortunately, it's not a catch all and the New immune system doesn't always finish the job. i am currently taking vidaza post transplant to try and support my donor cells and increase this graft versus leukemia, or in my case mds effect. one other approach that is added is a donor lymphocyte infusion to add more donor cells after additional conditioning sometimes instead of a full blown transplant, but there are many factors that go into the next treatment option that is best.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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