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I have been on Vidaza two different times - once in November and December of last year prior to my bone marrow transplant, and I have now been on it for three months post transplant. The side effects have generally been minor, and you do tend to see blood counts drop before they rise when it is working. Vidaza can take quite a bit of time to see a positive impact. Standard therapy says at least 4 treatment cycles, but it can take as many as 11 cycles to reach the best benefit.
The key with any chemotherapy drugs are to make sure that you take the anti-nausea drugs when they are offered. It is really easy to prevent, harder to catch up once it kicks in.
I wish you and your wife the very best.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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