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Originally Posted by PaulS
Hi - I haven't found it helpful to ponder how I might have come down with MDS. Ultimately everyone gets something.
The course of the disease seems different for everyone - if your husband is low risk and progressing slowly then watching and waiting is the best course - that can go on for years. As your husband is relatively young, a SCT may be appropriate down the road - but only if counts or marrow changes - otherwise I believe the risk of a transplant outweighs the benefits. I watched and waited for over two years - my Dr. told me of patients she has who were relatively stable for many years longer - unfortunately that wasn't me and my counts started dropping and I have just started Vidaza - and a SCT may be in store for me at some point. Hopefully you husband will stay stable for a very long time. Best wishes to you both.
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Thanks Paul. I did more reading up last night. They didn't mention a stage or category, but they told him he had no chromosomal abnormalities so I am assuming (based on what I read last night) that means he is low risk? He does not have the actual lab report - I told him to get it so we can see all the details. Also he clarified that the doctor said to give it just another 6 months. During that time they'll continue running labs to see how it goes.