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Old Sat Dec 27, 2014, 02:48 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Don't worry until you have to - and before worrying too much it seems like you need to see a specialist who will provide you with a diagnosis and can answer all your questions. I think 4.8% is within normal range - you need much higher blasts with MDS to be considered to have converted to leukemia - I think 25 or 30% - I don't know anything about neutrophils or why they'd be low with AA or PNH -or what the significance of blast counts are with those problems. Who made that diagnosis - your local hematologist? Have you seen the BMB report?
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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