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Old Tue Dec 30, 2014, 05:48 PM
Chandra4intx Chandra4intx is offline
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Join Date: Jan 2014
Location: Flower Mound, TX USA
Posts: 18
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I am not sure of your current situation and exactly what you need, but here is some info that may help. Dr. Neil Young at National Institutes of Health in Bethesda, Maryland is the leading research doctor for Aplastic Anemia. If you contact them they will pay for all of your testing and give you a definitive diagnosis. You have to pay for your trip there and accommodations but I felt this was well worth the peace of mind that I had the correct diagnosis. (We weren't sure if it was MDS or SAA due to some possible genetic markers) You may also qualify for treatment there which they pay for, although it would be in a clinical trial. I qualified last December but ended up staying close to home since I had a great doctor/hospital here in Texas, for my ATG and then subsequent bone marrow transplant in April. Hope this helps in some way...
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Chandra, 40 y/o wife and mother of 2 girls; DX SAA Dec 2013; H-ATG Jan 2014; Prior to ATG:HGB 8.3, HCT 24.3, Platelets 10, WBC 1.9, RBC 2.67, ANC 100; April 30, 2014 matched sibling donor BMT; currently off meds and counts are normal!
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