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Cabin fever
I feel like I'm going crazy. Been slowly getting tired of hospital food & while i've had a few visitors, I still just need to get out! Little things bother me. I've just changed rooms for the 5th time & got someone else's breakfast. I just cried. Then had a big rant to the nurse & asked to be disconnected today. I didn't care what Drs said. Turns out they are letting me out this arvowhen my Mum comes. But really hate this.
I 've been in & out of hospital since Nov. And right now been in for 4 weeks. I know many others are in for much longer. But I don't have anyone by my side. Only a visit for an 1hr or so every few days. I'm lonely. And sick of my lack of choices!
Rant over.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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