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Hi Polona,
Don really didn't seem to have any adverse reactions to Promacta. He took it for about a year - until his platelets went over 100,000. At that point they weaned him off and he has remained off of any MDS meds.
Since then his platelets have stayed around 100,000 - his reds are just a little below normal as are his whites. Promacta brought up both platelets and reds.
We are currently on the last leg of a 3,300 mile trip. We will have been in 9 hotels at the end of our trip - carrying luggage in and out of every hotel. Four years after starting Promacta - and being off of it for 3, it's as if there is nothing wrong with him. I don't know if everyone has had the same success in the trials but his has been nothing short of a miracle.
Next month, we are going to NIH for his 6 month check-up and a bone marrow biopsy. But we don't expect any surprises.
I hope your Father gets good news from Vienna.
Please keep us posted and feel free to ask any further questions.
Best wishes,
Sally
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