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Hi, Birgitta!
Thank you so much for your reply! Once again, you've amazed me with your knowledge, willingness to help, messages of hope, and gentle realism! I know your situation has been especially difficult recently, and I truly hope that things improve for you soon but know that you will handle each of the hurdles you must face with all the grace, dignity, and determination that you always have done.Your daughters and grandchildren must be so proud of you as are all of us who visit these forums (plus, I have a soft spot for you as my grandmother emigrated to the US from Sweden many years ago, and I grew up with so many wonderful Swedish traditions).
As you noted, I think the doctor is trying to assess if my dad is transforming into AML as he failed treatment with Vidaza and is not transplant eligible. He has thankfully been pretty stable and remarkably resistant to infection, but we know that being very high risk MDS his time to disease progression was probably not destined to be very long. He is the most wonderful, amazing, intelligent, gentle, fun dad, and I am so lucky to have him for my dad. Just hoping things can stay stable and comfortable for him as long as possible and that our family gets to have a little more time with him.
Thank you again and best wishes for many happy times!
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