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Insomnia
Hi MDS forum friends
When I was first diagnosed with MDS and hypogammaglobulinaemia and started 4-weekly IntraGam infusions my insomnia improved dramatically. Now I'm finding that I'm back to regular insomnia and averaging 3-4 hours interrupted sleep night after night. I'm not sure whether it's the MDS or the hypo. I'm not feeling stressed.
Even though I have the infusions my globulins usually sit around 20 (normal is 29-40). My other results last month aren't bad:
Hb 11.2
RCC 3.27
Hct 0.32
MCV 98
MCH 34
Platelets 124
WCC 1.7
Neut 0.8
Lymph 0.5
LD 186
Globulins 20
Alpha-1 2
Alpha-2 4
Beta 5
Gamma 7
Regular sleeping pills are no good for me - have tried many different kinds and they make me feel much worse the next day. I occasionally take St John's Wort and that will often give me a good sleep but not if I take it daily.
Any suggestions? Is this common with MDS ... or hypogammaglobulinaemia?
Thanks.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Last edited by Cheryl C : Sun Mar 1, 2015 at 10:56 PM.
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