Tks Ballie. I do appreciate that they cannot foresee the future, however, I wasn't even able to get answers on basics such as her blasts, etc. I had to get info from nurses at the oncology center....
My mother made it very clear from the onset that in her opinion, ignorance is bliss and that she would leave all the details to me. Unfortunately, the doctor will not see or speak to me without my mother present.
To his credit, he has been very matter of fact during my mother's scheduled appointments and I personally appreciate that. I simply have very basic questions that only he can answer as her physician. I simply want to know what he knows, without sugar coating. It's just hard to have a conversation with him as he will not make himself available, except when he meets my mother.
Since I have been trying to become as informed as possible, during the last app't, I asked him very specific questions about her test results. He was rather surprised and taken aback by my questions.... I managed to asked them in such technical terms that my dear old mom was never the wiser... Or at least she didn't know what it meant and made sure to tell me after the app't to keep it to myself as she was doing well and appreciates living every day as it comes.
I would never want to take that away from her.... I actually am so envious that she is able, for the most part, to be able to live in the moment.
Sorry for rambling on.... I am home with the flu so too much time on my hands!
I remain impressed with this forum...it's a godsend and all of you are simply the best to want to share, prop us up when we need it or simply listen. I have spent hours going through individual stories..... Exceptional humanity demonstrated and coming from every continent. It's impressive and heartwarming,
Annette