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Tue Apr 14, 2015, 10:01 PM
triumphe64
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
One thing you can do is attend the patient family conference in Cleveland in a couple of weeks. You will meet people just like yourself.
http://www.aamds.org/support-and-community/conferences
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group
https://www.facebook.com/groups/PureRedCellAplasia/
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