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Part of the process of being diagnosed with MDS for me included a CT (or MRI?) scan of my body from the top of my head to the tops of my legs. I'm assuming that this was to eliminate diseases like multiple myeloma. Severe bone pain can be related to MM so my strong advice is to have that symptom checked out ASAP.
When I had excess blasts I used to get some niggling pain in my ribs, shoulder and shins but it wasn't severe. Others on this forum have also reported bone pain symptoms.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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