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At my husband's 7 month appt. doctor also recommended it. We were shocked. We had no idea that with brand new stem cells that he would need chemo again. My husband was very against it. I did read that Robin Roberts did have some sort of chemo to prevent relapse. Not sure if our decision made any difference because 3 weeks after we decided not to get the chemo my husbands MDS transformed into an aggressive rare form of AML called Erthroid Leukemia. He passed away 7 months after relapse at the age of 46. I know it's a really difficult decision. Our doctor felt good about him not doing chemo. In the end it probably would not have made any difference. We will never know.
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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