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I have experienced GVHD of the face (including lips) and mouth. For the lips, i have had the most success with vaseline lip balm (in a white and blue squeeze bottle) switching to carmex and occasionally burts bees wax. The rotation, and consistency ( 5 to 6 times per day) seemed to help out the most. Of course, continue with the treatments that the dr. prescribes.
My mouth GVHD has been almost directly tied to how frequently I use the dexamethasone mouthwash. when it was bad, I would take it four or five times a day. The dyrmouth components - reduce sugar intake,
Hope this helps.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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