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Rars-t
Hello,
Who has on the forum RARS-T (refractory anemia with sideroblast and thrombocytosis)?
In summary : too much platelets and not enough red blood cell.
My boyfriend has this disease since 2011 and I need to speak with other people who have the same.
What are your lab results, are you jak2 positive?, how does your doctor the management of your disease (transfusion, iron chelation, cytoreductive treayment as hydroxyurea?).
We feel alone because anyone has this form of the disease (0,004% of myelodysplastic syndrom I think).
Thank you, Béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
Last edited by gramous : Thu Aug 20, 2015 at 10:53 AM.
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