[Jeevie]

I've been reading posts here for a while and this is my first post. I've been sick for 3 years and can't seem to get any answers. It started with me needing a blood transfusion because my RBC and hemoglobin were very low. Since then, my doctor keeps sending me for iron infusions which have not been working. Even when my ferritin is at 100, my hemoglobin is still low and the same level as when my ferritin is 15. He wouldn't listen to me, so I wound up getting a second opinion. My new doctor thinks it is a blood disorder. Specialists have ruled out autoimmune disease, thalasemia, and low iron. Have had endoscopy and colonoscopy which came back clear. I am waiting to see a hematologist. I'm worried this might be MDS. Unfortunately, I'm in Canada and wait times for specialists are so long. I'm thinking of maybe seeing a doctor in the USA and asking for a bone marrow biopsy.

What symptoms and blood test results did people have before they were diagnosed?