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Trying to get a diagnosis
I have had a history of abnormal counts in HG, WBC and platelets for approximately 13 years. I began to see a hematologist about nine years ago. She suspected AA but had me visit every six months. There was fluctuation in my numbers but not significant. Eventually I convinced her that my numbers had been normal previously. She then ordered a BMB which showed no definitive diagnosis but I was told that there was evidence that MDS was a possibility and that it was necessary to monitor it.
I have moved to another section of the country and established myself with an excellent Cancer hospital They did see some change in my CBC numbers and scheduled another BMB. This time there was a definite diagnosis of MDS but I was listed as a very low risk.
The BMBs are not painful and I have had mine under local anesthesia. If your numbers have not dropped significantly please be patient, It may not be MDS but rather a treatable disease by a qualified team, Best of luck
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